Status update!


It’s a cool day in Ottawa today but we have received warm news for our group! We heard today that we have been approved as a Not For Profit Corporation in Ontario. What this means for us is that now we can move forward with funding proposals that will help fund our budget and allow us to develop and implement awareness and patient support activities.

Our board members can now start work on these things but we want to hear from our members as well. Do you know of funding sources that may help us? Do you have ideas for patient support activities? This is YOUR group and your thoughts and ideas are vital, so feel free to share. Simply post your ideas in the comments, in the Facebook group or send us an email at

I’ve also spoken with Matthew Luloff, my local representative at Ottawa City Hall, who has agreed to put our links on his social media pages. One more score for Acromegaly Awareness! He has also graciously agreed to attend the Light of Day Exhibit at Shenkman Art Centre in March 2020. We will keep on working to get the word out there, we have a voice and we are going to use it!

All the best,



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